About me

I am a 47 year old male.
For the past few years I have had many symptoms with are vague in nature....
The first problem of a medical nature I had was back when I was 18 years old, I woke up one morning and could not move because of sever pain in my back at about the level of my shoulders. I was admitted to hospital but doctors could not find why I was in so much pain. I was discharged on Distalgesic and the pain did settle after a few weeks.
In 1994 I noticed a a sensation like Ants crawling on my skin along with twitching in both my calf muscles and at the time I saw a Neurologist. He diagnosed Muscle fasciculation due to Peripheral Neuropathy.

In early 2008 I noticed a small lump in the back of my neck, I also had problems with vertigo & dizziness and gradually started having sever pain in my thoracic spine. After many tests I was sent for an MRI of my Brain & C-Spine
I eventually got a diagnoses on the 13th of November 2008 following an MRI scan.

That DX was
A Neurenteric Cyst of the subgroup Split Notochord Syndrome, this is shown as a 6mm cyst anterior to the left hemichord @ the T1 level. This appears Intradural & Extramedullary. There is an associated myeioschsis and a short segment Syrinx from the lower border of C7 to the upper border of T2. a segmentation abnormality affecting T1 T2 & T3 vertebral bodies.....

Split Notochord Syndrome

a group of spinal congenital malformations that share an embryological origin in a focalfailure of the notochord during its formation to separate the ectoderm and the endoderm, resulting in a strand or adhesion between the two layers which will form, in the most severe cases, a complete direct communication between the intestine and the dorsal surface of the skin (dorsal enteric fistula) or, in less severe cases, enteric-lined cyst cords or diverticula along the tract of the fistula (enteric enterogenous cyst, dorsal enteric sinus, dorsal enteric diverticula). Because the notochord may split or deviate around the adhesion, the complete or partial malformation may lie medially or paramedially relative to the vertebral structures.


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